The world mourns the loss of Prince Frederik of Luxembourg, who bravely fought a rare genetic disorder known as POLG mitochondrial disease. He passed away on March 1, 2025, in Paris, as announced by his family on the POLG Foundation website.
What is POLG
Mitochondrial Disease?
POLG mitochondrial
disease is a rare genetic condition that disrupts the energy production in the
body’s cells. This leads to progressive organ dysfunction and, ultimately,
organ failure.
- No cure or treatment: Currently, there are no effective
treatments or cures for this devastating disease.
- Global impact: Over 300 million people worldwide suffer
from rare diseases like POLG, many of which go undiagnosed or are
identified too late.
Prince Frederik was
diagnosed with POLG when he was 14 years old. Despite the challenges, he
remained resilient and dedicated his life to raising awareness and supporting
research for a cure.
A Legacy of Courage
and Advocacy
Prince Frederik
founded the POLG Foundation in 2022 to support research and find therapies for
this rare disease. His father, Prince Robert of Luxembourg, shared heartfelt
words about his son’s unwavering commitment:
Key Contributions of Prince Frederik
- Awareness campaigns: He worked tirelessly to educate the
public about POLG and other rare diseases.
- Medical trials: Frederik participated in clinical trials
to help researchers find potential treatments.
- Inspiring hope: Despite his condition, he remained
optimistic and focused on helping others.
A Heartfelt
Farewell
Prince Frederik’s
passing came just one day after Rare Disease Day, a poignant reminder of the
challenges faced by those living with rare conditions. His father described
Frederik’s final moments:
Even in his final days, Frederik maintained his disciplined routine. His Italian Duolingo and exercise alarms went off as usual, a testament to his determination and spirit.
A Message of
Gratitude
Prince Frederik often
expressed gratitude for his life, even with the challenges of his disease. In a
touching revelation, a close friend shared:
"Frederik once
said, ‘I’m glad that I was the one born with this disease". Even though
I’ll die from it, I know my parents will save other children.’”
His selflessness and
dedication to helping others will forever be remembered.
Remembering Prince
Frederik
Prince Frederik’s
legacy lives on through the POLG Foundation and the countless lives he touched.
As his father poignantly stated:
“One light was
extinguished, but so many remain.”
Let us honor his
memory by supporting research and awareness for rare diseases like POLG.
References
- POLG Foundation
- Rare Disease Day Official Website
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